dysautonomia awareness! (Pots)

 As you guys may know, October is dysautonomia awareness month. Dysautonomia refers to a disorder of autonomic nervous system (ANS) function that generally involves failure of the sympathetic or parasympathetic components of the ANS, but dysautonomia involving excessive or overactive ANS actions also can occur. Over 70 million people are effected with a type of dysautonomia in the world. I am one of those people. I have pots along with 1-3 million other people.

It makes living an everyday life hard but with awareness and support you can push through it. The symptoms are truly different for everyone. I struggle with migraines, nerve pain, chest pain, brain fog, nausea, low energy, depression, anxiety , and rashes. It took a long time & a lot of test to finally find out that I had pots. I ended up getting it after I got mono when I was about 10. After that I was continuously getting ill. I didn’t get diagnosed with pots until I was 15 by a cardiologist and rheumatologist. Before that I was just accused of having depression or wanting attention. Now that I know, I see a specialist that specializes in pots & I learn a lot about it. 


I went gluten free because it is suppose to help with stomach pain and how the heart receives signals. Since cutting it, I’ve noticed when ever I do happen to eat it makes me feel 10x worse. It does make quite the difference. Gluten free isn’t hard, Pinterest is the to go to when in need of a recipe. Also, increasing fluids and salt helps. I drink about 3 liters of water a day & I take sodium medication. I take different medicines to help different things. That’s the one thing I absolutely get tired of doing is taking my pills. But as long as they help, right? Also exercising is an important key to feeling healthier. I have posted my workout routine. I usually am so tired and in pain but working out actually does help and laying in bed all the time is terrible on my body. So I don’t mind the 15-30 minutes I spend working out as long as it’ll help. My pots tends to go in cycles. I don’t know if that happens to other people but I always feel better in the summer, worse in the winter, and in the middle during spring and fall. In the winter, it’s hard for me to even get out of bed. I’m strong on the spoon theory just for that reason. 
 I’ve had switch to home school because I would miss to many days of public school and it’s a lot better for me all together. I have to stay home a lot more then I want too. If it were up to me I would be out livin a crazy fun life with my gal pals all the time. Sadly, that isn’t the case and I’m lucky to see my friends once every month. But because of that and everything else, my mom has became a best friend of mine. She is the one that is always there for me, takes care of me, and makes sure I’m always happy. When she knows I’m having a bad day she will come up to my room and give me a candy bar. 

Being sick all the time has made me have a new perspective on life and develop new interest. I believe everything truly does happen for a reason. I think since I’m sick all the time, I will come out stronger in the end. I believe everyone who is going through something, they will get through it stronger and better over all. If you stay positive you will have a positive outcome. I watch all sorts of things whether it’s on Netflix, Hulu, or even YouTube and some of my favorite shows to watch are greys anatomy, homeland, supernatural, criminal minds, and rupauls drag race. I started knitting because why not and it’s time consuming. I keep up with the politics because there is always something going on and I find it all interesting. I keep busy and I stay happy and as healthy as I can. Pots try’s to get the best of me but I make out to be the best it can be. 

If you know someone who has been struggling, give them support because there never can be too much. It is nice to know people care and it truly does help with the mind set of things. If you have any advice share it too! 

    7 thoughts on “dysautonomia awareness! (Pots)

    1. yes all the time & my doctors won’t tell me a reason for it! I’ve tested to see if I’m allergic for anything & it came back negative! My doctor suggested going gluten free and it still happens! It’s so odd wish there was answers!

      Liked by 1 person

    2. Mine is more sporadic/episodic- thankfully! However, when it comes on it lasts over a couple days. Someone (not a medical professional) said it looks like shingles… yet, I don’t have shingles!

      Like

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