Hi everyone, happy Thursday. October is important to me since it’s Dysautonomia Awareness month. Personally, Postural Orthostatic Tachycardia Syndrome is what affects me along with millions of others around the world.
It has been quite the journey and the internet has been so much help along the way. I came across Vanessa Matelski better known as potsiespoons. She is one of my favorite accounts to follow because she has POTS too. She makes cartoons and talks about the struggles people go through. For October she created a challenge that I thought I would do. It’s a good way of expressing my side of the illness.
How dysautonomia effects you
I like to think I’m just your average kid which tends to lead me to overdoing it and making myself more sick than usual. As most of you know I spend most of my time with my friends. They understand that I have POTS but most of them don’t fully understand what it is or why I can’t do what they normally would do. So, it is sometimes hard to make plans and find activities that we all can do and feel good about. The summer is the best for me and when I feel my healthiest. Which leads to December-March being my worse. I am hoping this winter will be different or at least better than what it has been in the past. Now that I changed my lifestyle into healthier eating and working out I don’t think it will be as bad. I would truly struggle even getting out of bed each day for so many different reasons. I would have migraines, body aches, fatigue, dizziness, and vertigo. Since I wasn’t able to get out of bed that much I switched to online school where I would be able to do it anywhere at anytime. I try to maintain a healthy balance between friends, family, school, blogging, and rest. At times it can be hard and chaotic but I’m thankful for the progress and where I’m at in life.
What dysautonomia looks like
Dysautonomia looks different for everyone. To a stranger, you probably wouldn’t even know one has it hence the nickname, the invisible illness. You can usually find me with a water bottle and sitting in the nearest chair. Through out the day you will see me taking my medicine. I take around 30 pills and vitamins 4 times a day. It’s what I’ve found is best for me. The one thing that is visible is this rash you see in the picture. It occurs whenever I stand. Other than that, I’m just a girl who looks like she could use a nap.
This isn’t really a hack as much as they are tips. Maintaining an exercise routine is the best thing you can do for yourself. It can help with how long you can stand. I noticed a big difference with this. I went from being able to stand for 30 minutes max to 2 hours max. Also, your diet plays a big role in your health. Staying hydrated is important; drink lots of water and stay away from caffeine. Gluten can also make things worse. I’ve been gluten free for about a year and it’s the best thing I’ve done. It’s help a lot with chest pain, blood pooling, headaches, and nausea.
Your own POTS problem
I have a mix of problems but none of them are as bad as the migraines I get. I have a headache every day and a migraine at least once a week. When I get migraines I feel useless. I’m unable to do anything besides just lay in bed, in the dark, in complete quite. Some things I’ve found that help are boosting the salt intake, drinking more water or some Gatorade, and exercising. I’m hoping with time they will get better!
The scariest thing about dysautonomia is…
Dysautonomia can have some scary moments. For me, the scariest is that there is no cure. There is just treatments that can improve symptoms but won’t overall solve them. There is so much unknown out there and it just sucks to be honest. At the moment, doctors don’t really know how to help me more than they have. I understand that because they’re doing their job and helping me with an illness that doesn’t have a cure. So, there is only so many things they can do to help. There is the chance of outgrowing it and it gets better on its own but I guess we will just have to wait and see!
This post is something that is very important to me. I started this blog because I was struggling with being sick and spending so much time in bed. I needed something to make the time go by so I created this website in hopes of connecting with others. It is what continues to push me to do my absolute best even when I don’t feel as if I can.
Currently, me and millions of other are in need of a cure. If you would like to donate please click here! Pictures are from Dysautonomia International. They are very informative and have a great community. Like I said, this post was inspired by PotsieSpoons. You guys should definitely check her out. She was the first person I ever found who also had pots. I appreciated how real she kept her cartoons and how awesome she is at being her.
Where to find me:
YouTube: andi kubichek
Alyssa’s: It’sJustLyss Channel
*Guys I was able to get a 10% coupon code -> “andikubi” for poppyapparel.com -> @poppyapparelshop !! They have all sorts of cute clothes, bags and swimsuits! Also it’s free shipping! Woohoo
*MontBleu gave me a 20% discount for all there products! Use the code BLOG . I will be posting a YouTube video soon testing out some products! They are great quality and super stylish! Definitely worth looking into! No I don’t get money from saying this, I just really believe in their products!
I will be doing a small giveaway on my Instagram once I hit 5000 followers! Make sure to head over there for a chance to win! ✨🎟